Long Term Outcomes
🤔 Question: What is the best way to document the LTO for patients in the registry who are discharged with follow-up at another facility/clinic? This happens sometimes because of insurance requirements, or because a patient is being discharged with family who live closer to another burn center, and follow-up is arranged there. It seems odd to say "lost to follow-up" because they have been arranged to receive follow-up elsewhere, but the other options of "follow-up continued/ongoing" and "follow-up complete" don't seem to fit either.
🌱 Answer: If you send them to another facility for follow up, then you should check "Lost to Follow Up" because the patient is no longer coming to your facility, and you are no longer doing the follow-up on the patient. This is not a negative for your facility as there are many facilities that must refer patients to other facilities for follow-up because of distance and other issues.
🤔 Question: Should LTOS be tracked for non-burns too?
🌱 Answer: Yes, LTOs should be collected on all patients entered into the registry that continue to be followed by the Burn Service.
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Introduction
Date of 95% Wound Closure
🤔 Question: Is the Variable "Date of 95% wound closure" required for non-burn patients as well?
🌱 Answer: No, this field is only required for burn patients. The next update of the Data Dictionary will reflect this but for the time being, only record this information for burn patients and click "Not applicable" for patient with inhalation injury or non-burn patients.
Outpatient Follow Up Status
Operative or Outpatient Procedure Date
Operative or Outpatient Procedure Type
Operative or Outpatient Procedure Location
Operative or Outpatient Facility Location
Date of Outpatient Visit
Scar Appearance Evaluated
Scar Assessment
Pressure Garment Was Used
Patient has Return to Pre-Burn Injury Activities
Presence of Depression
Presence of Post-traumatic Stress Disorder (PTSD)
🤔 Question: Can a social worker document PTSD or ASD?
🌱 Answer: A medical professional can document the presence of PTSD or ASD - a psychologist or psychiatrist should be involved in the diagnosis of these conditions.
Presence of Acute Stress Disorder
Presence of Pain
🤔 Question: Which LTO presence of pain option would we choose for the presence of pain for a patient who says they have pain, but are not taking either prescription or over the counter pain medication? They are choosing to just live with what they have, they don't like taking medications, or it doesn't bother them enough to take something.
🌱 Answer: Please select "Yes, requiring over the counter pain medication" for those patients who say they have pain but are not taking any pain medication.