Long Term Outcomes
🤔 Question: What is the best way to document the LTO for patients in the registry who are discharged with follow-up at another facility/clinic? This happens sometimes because of insurance requirements, or because a patient is being discharged with family who live closer to another burn center, and follow-up is arranged there. It seems odd to say "lost to follow-up" because they have been arranged to receive follow-up elsewhere, but the other options of "follow-up continued/ongoing" and "follow-up complete" don't seem to fit either.
🌱 Answer: If you send them to another facility for follow up, then you should check "Lost to Follow Up" because the patient is no longer coming to your facility, and you are no longer doing the follow-up on the patient. This is not a negative for your facility as there are many facilities that must refer patients to other facilities for follow-up because of distance and other issues.
🤔 Question: Should LTOS be tracked for non-burns too?
🌱 Answer: Yes, LTOs should be collected on all patients entered into the registry that continue to be followed by the Burn Service.
🤔 Question: For patients who have clinic procedures and then are later admitted for an initial inpatient stay for care of their initial injury, would you include those procedures under Hospital Procedures in LTOs or only those that occur after the initial admission?
🌱 Answer: Include Hospital Procedures performed only after the discharge from their initial inpatient stay.
🤔 Question: Will there be reporting available in BCQP for registrars to keep track of patient registry records that have ongoing LTO follow-up vs. those that have been lost to follow-up? It would be helpful if this were available as a standard report already built for us in the reporting environment and available for use at the time of the LTO roll-out.
🌱 Answer: Yes, once bData releases the fields in data entry they can develop reporting. They will follow up with everyone in Spring 2024 so you can see a couple reports they will be adding to our library: 1) To keep track of worklist (ongoing follow up on) and 2) summarizing those metrics and evaluation data.
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Introduction
Date of 95% Wound Closure
🤔 Question: Is the Variable "Date of 95% wound closure" required for non-burn patients as well?
🌱 Answer: No, this field is only required for burn patients. The next update of the Data Dictionary will reflect this but for the time being, only record this information for burn patients and click "Not applicable" for patient with inhalation injury or non-burn patients.
Outpatient Follow Up Status
🤔 Question: If patient is from out of state and follow-up care after inpatient stay does not occur at the burn center clinic/outpatient department, what should be entered for follow up status?
🌱 Answer: If the patient will not be returning for follow up care, and that care is still needed, they should be recorded as lost to follow up. This is true even if they were referred to another care center for follow up.
Operative or Outpatient Procedure Date
Operative or Outpatient Procedure Type
Operative or Outpatient Procedure Location
Operative or Outpatient Facility Location
Date of Outpatient Visit
Scar Appearance Evaluated
Scar Assessment
Pressure Garment Was Used
Patient has Return to Pre-Burn Injury Activities
Presence of Depression
Presence of Post-traumatic Stress Disorder (PTSD)
🤔 Question: Can a social worker document PTSD or ASD?
🌱 Answer: A medical professional can document the presence of PTSD or ASD - a psychologist or psychiatrist should be involved in the diagnosis of these conditions.
Presence of Acute Stress Disorder
Presence of Pain
🤔 Question: Which LTO presence of pain option would we choose for the presence of pain for a patient who says they have pain, but are not taking either prescription or over the counter pain medication? They are choosing to just live with what they have, they don't like taking medications, or it doesn't bother them enough to take something.
🌱 Answer: Please select "Yes, requiring over the counter pain medication" for those patients who say they have pain but are not taking any pain medication.